Become a Member

Benefits of Becoming a Member of the SWEET CoR Network

  • Access to standardised, paediatric-specific diabetes care and treatment guidelines both nationally and worldwide:

Differences between guidelines may influence surveillance and quality of care in paediatric diabetes within Europe. The SWEET-project recently evaluated current national treatment guidelines for the care of children with diabetes across Europe. Although most countries recommend the ISPAD Clinical Practice Consensus Guidelines (CPCG), these guidelines are far from implemented across Europe. Main reasons are language barriers and the necessity to adjust the guidelines to the European context.

SWEET e.V. has aimed therefore to endorse the further translation and contextualisation of the ISPAD CPCG to render it accessible to all healthcare professionals. Once implemented on a European wide level, benchmarking of carefully defined robust quality of care and quality of life indicators will allow us to improve these guidelines on a regular basis ensuring an evidence- based care for all children.

  • Access to standardised patient education programmes and paediatric training programmes for healthcare professionals: 

Since diabetes management requires far-reaching lifestyle changes, it is indispensable that quality-assured and age-appropriate education is delivered to the patient, the family and other caretakers, not only at disease onset but also for following-up on through adulthood.

However, only very few countries have published and implemented a structured curriculum lead and evaluated programmes for different age-groups and caretakers. In addition, a huge variety of creative tools, e. g. booklets, leaflets, games, videos and material for educating children of different age-groups and their parents are available – but most of them are not linked to a structured education programme.

SWEET e.V. aims therefore to harmonise and integrate these education materials into holistic, structured, quality-assured national education programmes. A comprehensive European diabetes educational tool box is aimed to be published and continuously updated in collaboration with and for the Centres of Reference. SWEET e.V. currently provides already access to a variety of educational tools in several languages.

Also healthcare professional training shows great diversity and lack of standardisation making it a complex task to have transferable education concepts and qualifications across European borders. SWEET e.V. supports therefore a standardised, accredited approach to the training and continuing professional development of health care professionals and the Paediatric Diabetes Multidisciplinary Team (MDT): A curriculum for the training of the MDT was developed and will soon be ready for implementation.

  • Access to a common patient-data handling, international benchmarking, quality circles and research projects: 

One of the most important tasks of the SWEET study is benchmarking collected data, despite the major differences in social and economical as well as cultural and educational levels around Europe. 

Since appropriate, safe and reliable data collection is the essential basis for the evaluation and comparison of data, SWEET has developed an electronic database system, DIAMAX. On the basis of standardised electronic health records, health, quality of life and health economic data are collected, anonymised and submitted to a common database. The reporting structure allows for monitoring of ongoing changes at centre, national and EU levels. Health, quality of life data and different approaches to paediatric diabetes care can be compared and analysed.

A European Quality Circle, consisting of a statistician, an IT specialist and several diabetes specialists, will discuss the comparable data, identify inequalities between centres in different EU Member States and develop solutions for reducing these inequalities.

The database will also be used for research purposes: e.g. for studying the effect of diabetes in childhood/adolescence on early vascular ageing and for identifying potential factors to delay accelerated biological ageing in diabetes.

Finally, current therapy recommendations can be adapted on basis of the ongoing comparisons and evaluations.

  • The evaluation of clinical outcome parameters and the exchange of queries and supporting material (for CoRs using the DIAMAX data-system): 

Standardised (electronic) health records allow for the longitudinal evaluation and follow-up of clinical outcome parameters and for comparisons within and between patients and centres. Gaps and deficits can be unmasked and therapies can be adjusted if necessary. Successful approaches and techniques can be disseminated as well.

Eventually patients will also have the ability to log on to their own secure portal to complete outcomes assessments, receive relevant reminders and education material, as well as communicate with their local paediatric diabetes treatment centre. In a first step the SWEET online platform will allow the primary SWEET centres to connect to one unified diabetes database in several languages.

  • Help to improve the quality of patients’ life:

By creating a network of paediatric diabetes centres known for their expertise in treatment and education and connected through common objectives, SWEET will help to improve the quality of life of children and adolescents with diabetes across Europe: The network will make the newest approaches and most successful programmes available for all SWEET healthcare professionals across Europe, ensuring as such equal accessibility to up to date and highly qualified diabetes care for young diabetes patients.

Finally, this network can generate leverage for raising paediatric diabetes-related issues, both on a national and European level.

 

Applying to Become a CC/CoR : Requirements, Criteria and Practical Information

 

 

The box on the left indicates the process of becoming a SWEET Centre of Reference (CoR). To receive the Benchmarking Report, which is needed for the Peer Review Process, you have to upload the patient data twice a year. After undergoing the Peer Review Process, you have to do a self-assessment at the Peer-Review-website, which is externally verified. Afterwards the peer review visit takes place and in the end you get certified as a Centre of Reference or Collaborative Centre.

For more information please take notice of the
SWEET Guidelines
 

The requirements for a Collaborative Centre are linked both to patient care and to research activities (see Table 1).

 

A nomination as Centre of Reference (CoR) entails additional requirements (see Table 2A) and is dependent on extra criteria (Table 2B) which need to be met by the paediatric diabetes centre.

 

For additional information, please do not hesitate to contact SWEET e.V. at:

SWEET e.V. Coordination Centre
Diabetes Centre for Children and Adolescents
Kinder- und Jugendkrankenhaus  AUF DER BULT
Janusz-Korczak-Allee 12
30173 Hannover
GERMANY

Tel.: +49-511-8115-3337
Fax: +49-511-8115-3334
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Online submission of your application is possible via this form:     
                                         
                      >>>Application Form<<<