COUNTRY REPORTS

Situation of paediatric and adolescent diabetes in the EU (data collected in 2008)

Below you can find diabetes-related information per country with the availability to compare with other European countries. If you would come across information which needs to be changed or updated, or if a diabetes centre/hospital has to be added, please inform us accordingly


Disclaimer
The author accepts no liability that the information provided on this website is up-to-date, correct, complete or representative. Each institution that supplies information is solely responsible for the accuracy and completeness their own data. Liability claims against the author based from the use of incorrect and incomplete information are excluded in principle.

                                                                

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Demographics and Epidemiology
Country
Official name of the country
Germany
Abbreviation
Three-letter country code
DEU
Level of data
Are the data applicable to the whole state, or specific to a region / nation / federal state?
name of the region / nation / state
Where are the data from?
Population size
(0 - 14 years)
11487000
Is there a geographically defined pediatric diabetes register?
yes green
What is the scope?
three federal states, plus a widely disseminated system of quality control DPV
Name of the register
Baden-Württemberg, Sachsen and Nordrhein-Westfalen - national-wide DPV system
Remarks to register
Although there is no national pediatric diabetes register reported in Germany, several diabetes registers exist at the level of federal states: Baden-Württemberg, Sachsen and Nordrhein-Westfalen. Moreover, most pediatric diabetes centres document their patients through the DPV system, which currently hosts the documentation of more than 17,000 patients < 18 years.
Diabetes organizations
Patient organizations
The most important organization for children with diabetes in the country
Bund diabetischer Kinder und Jugendlicher
Its web address
www.bund-diabetischer-kinder.de
Is this organization exclusively for childhood diabetes?
yes
Organization for health professionals and physicians
Organization for physicians and/or health professionals focused on diabetes
Deutsche Diabetes Gesellschaft (DDG)
Its web address
www.deutsche-diabetes-gesellschaft.de
Other organization for physicians and/or health professionals focused on diabetes
Its web address
Organization of pediatric diabetes care and education
Who treats pediatric diabtetes
The table indicates what is the usual distribution of competence in pediatric diabetes care using a scale from 1 to 5, where 1 = never, 5 = always.

PED DIA = pediatric diabetologist, ADU DIA = Diabetologist for adults, PED = pediatrician, GP = general practitioner

PED DIA ADU DIA PED GP
Prescribes Insulin 5 2 1 1
Prescribes glucometers and strips 5 2 2 2
Provides education 5 2 1 1
Prescribes insulin pumpls 5 2 1 1
Provides long-term follow up, including complication screening 5 2 1 1
Education of a diabetic patient
Is the content of education of diabetic childred regulated?
no
Who determines the content of education?
individual centres
Is education reimbursed?
with limits
Remarks to education
Education for children and adolescents with diabetes in Germany is partly reimbursed by the health insurance company which foresees in a re-education every 2 years in an outpatient setting.
Pediatric diabetes centres
Are there officially recognized pediatric diabetes centres in your country?
yes green
Who renders the status of the centre?
Diabetes Society
Are there defined criteria for being a center?
yes green
Is the status of the centre permanent?
no, reapplication is necessary
Does a centre have to participate in a QC programme?
yes, in a mandatory unified program
Remarks to participation in a national QC system
Quality control of pediatric diabetes care
Is there a system of quality control in pediatric diabetes care at the national level?
yes green
Who organizes this system?
DPV, FQSD (Forum Qualitätssicherung in der Diabetologie)
List of quality indicators regularly collected by the system.
Glycated hemoglobin levels
yes
Frequency of DKA with hospitalization
yes
Frequency of severe hypoglycemia requiring assistance
yes
Growth data
yes
Data on quality of life
no
Microalbuminuria levels
no
Other indicators
yes
List these indicators
What is the feedback from the system?
electronic on-line statistics
National standards/guidelines of diabetes care
National criteria for diabetes control in pediatric age
Are there defined national standard criteria for diabetes control in pediatric age?
yes green
Who issued these criteria?
Deutsche Diabetes Gesellschaft (DDG)/AGPD
Have they been published in professional journals?
yes
If no, do you use adult criteria of diabetes control?
National guidelines defining the surveillance for chronic diabetes complications
Are there national guidelines defining the surveillance for chronic diabetes complications and diabetes-associated diseases that are applicable to pediatric practice?
yes green
Who issued these guidelines?
DDG/AGPD
Are they ISPAD compliant?
in most instances
The guidelines apply to following complications
diabetic retinopathy
1
diabetic nephropathy
1
diabetic neuropathy
0
autoimmune thyroid disease
1
celiac disease
1
hyperlipidemia
1
psychological disorders
1
other, please list
0
other complications - list
Current* status of reimbursement for diabetes treatment.
(* year of last revision
Recombinant human insulin
yes green
Rapid acting insulin analogues
yes green
Long acting insulin analogues
yes green
Specification of restrictions on insulin reimbursement
Insulin pens
yes green
Specification of restrictions on reimbursement of insulin pens
Insulin pumps
yes green
Specification of restrictions on reimbursement of pumps and material
Personal glucometers
restricted yellow
Specification of restrictions on reimbursement of meter strips
Blood glucose monitoring meters
restricted yellow
Specification of restrictions on reimbursement of glucometers
Continuous glucose monitoring - intermittent/diagnostic use
restricted yellow
Continuous glucose monitoring - continuous use
restricted yellow
Specification of restrictions on reimbursement of CGM
Lancets
yes green
Specification of restrictions on reimbursement of lancets